So, for all those who don't know yet, Alan started treatment five days ago! He was accepted into a clinical trial in Birmingham, Alabama, 2 1/2 hours from us. The process of getting approved and beginning treatment happened very quickly. We ended up coming back early from our Spring Break trip to Florida and Georgia, in order for him to begin treatment as soon as possible. Rather than having to have injections once a week that would make him very sick, he is on an all-oral treatment (five pills in the morning, five in the evening) and is not nearly as sick as we hear everyone gets on the standard treatments available at this time. We are so thankful!
So far the side effects of the medications have been tolerable. We were told he would likely have headaches, nausea and fatigue. So far there has been no nausea, but the fatigue has been pretty strong. He has had light headaches on and off. Unfortunately, he caught a cold two days after beginning treatment, and the combination has put him decidedly under the weather. He is beginning to surface after two days of misery. We have been told that the first three weeks are when the side effects of medication are strongest, and after that he may feel nearly normal. We'll see.
Thank you all for your prayers and support!